Sending good thoughts your way.
Thoughts and prayers to your husband and you.
Thank you all. It means so much.
Here’s what we know so far, which admittedly, isn’t much… if he had not had that adverse reaction to that new medication, we wouldn’t have had any idea about the aneurysm. Since his symptoms are so violent (at least the way I understood how they explained it), the CT scan they did didn’t show very good detail. So, all we learned, beside its existence, was that it’s incredibly small at just 3 millimeters.
The doctor had ordered a second CT scan to find out more information, like if it’s bleeding or not, although she had preferred an MRI. However, Jaceson requires an open source MRI due to being severely claustrophobic and having panic attacks when he’s in a regular one. Regardless, in the interim as we hashed out the specific issues, his GI doctor and the liver specialist decided he’d be best served at a larger, better equipped facility and, since his problems have advanced so dramatically do rapidly, where said liver doctor could now become the primary in his care.
I have finally become disenchanted with the substandard care at his ‘home’ hospital, so I’m not exactly broken up about the move. I’m even hopeful that some of his diagnoses that have basically been left without much explanation or a plan of action will now be determined. I just wish that had been the situation all along and that I hadn’t been told he had an aneurysm in the same way someone would request you pass the butter. But that’s neither here nor there. 
Anyway, we hope to have some answers soon. I haven’t slept in the past four days and I only thought things couldn’t get worse. Thank you to everyone for reading along and offering their well wishes. Reading those have been my only brief bright spot in an otherwise day is rather forget.
More updates as I can.
I’m so sorry to hear that - here’s good thoughts coming to you and your husband from another stranger on the internet.
Oh dear…
Stay strong, faithfool…take care of your husband, and yourself. And keep us posted when you can. I’ll think healing thoughts!
-D/a
There is a site called WellSpouse where you may get support from others in your same sort of situation. I know it helped me until my husband passed.
Good luck
Leave him.
I’m so sorry you guys are going through this. Best of luck.
This is really inappropriate – in fact, rather jerkish – in this thread.
No warning issued.
twickster, MPSIMS moderator
Good thoughts coming your way.
{{{{faith fool}}}}
You are in my thoughts.
You and your family are in my thoughts, faithfool. Please let me know if I can help in any way.
I’m so sorry to hear that. Wishing you all the best in this difficult time 
I’m so sorry. You’re both in my thoughts and prayers. Hope the new treatment setting brings more answers.
Quick update: all the symptoms from his bout with Reglan have passed, thank God, and appear they’ll have no lasting effects. But I’m not sure how we’ll no for certain. I’ll ask the doctor today.
The results from the new, additional testing will also be back and read today, so I’m sure I’ll be able to report on the details of the aneurysm. For now though, he’s resting comfortably (having gotten decent sleep for the first time in forever) and his hepatic encephalopathy has passed, too.
We’ve seen a nutritionist (which he desperately needs), speech therapist and a representative from the liver transplant team. His MELD (model for end-stage liver disease) score is still too low (at around an 8 – I dolt believe they put you on the list until it’s over 20, but I could be remembering that wrong) to go on the transplant list yet, but fortunately, all other indicators are good. Except he has a touch of bilirubin. I know that’s similar to jaundice, but I’ll have to investigate more before I can elaborate. Sorry.
Well, his liver enzymes are a bit high, but the ammonia is back within normal range, blood conditions are under control, blood pressure is perfect and he’s no longer got any stomach pains, fever or sinusitis. The only possibility of something more being wrong is his potential right now of having pancreatitis. We’ll see though. As of right this second, he’s been taken off NPO and will be allowed to go back on a clear diet. After so many days without food, he’ll be thrilled. Yay!
I can’t imagine how much longer he’ll stay. Obviously, we’re waiting for the test results and depending on the course of action from there (like if it’s crucial to do something about the aneurysm now), we could stay longer to address his not eating problem, etc. But beyond that, if his previous stays elsewhere were any indication, he’ll be wrapping up his visit soon and will be back on the way home.
The only thing good that can come of this whole business this go around (if you can call it that) is that I do believe it’s finally sunk in just how devastatingly sick he is. I no longer think I’ll have any problem in him not attempting to do his part to take care of himself. No more fighting the Lactulose, or water consumption, or need for therapy / exercise / eating right / educating himself / whatever. He’s been ‘scared straight,’ if you will.
Anyway, thank you all again everyone. I know some people tease that this really isn’t a community, but that couldn’t be farther from the truth for me. If it hadn’t been for you guys, I would’ve thrown in the towel by now. You guys are my rock. 
Finally, I will check out WellSpouse. that sounds like a wonderful resource and I’m so very sorry for your loss. I just can’t imagine. And to Dolores, I really appreciate your generous offer. If I ever think of anything we might need help with, I promise to let you know. Thanks once more.
Love,
Kemi~
Again don’t know what to say in these situations, ff: just hang in there.
faithfool, you are wonderful. Keep on being you.
((hugs))
Can’t offer any practical help, but always willing to listen.
**faithfool, **I salute you for showing so much strength in this situation. I wish you and your husband the best of luck.
Faithfool, I’ve read your post at the beginning of this thread, and nothing else. (yet)
I hate to sound so trite as to suggest that a book could be your answer, but I have a recommendation anyway. You asked for any advise someone could give, and I can tell you honestly that when I was at the end of my rope, this book helped me. Even if only a little, help is a step in the right direction. This book supposes that you have a belief in “God”, however you define that.
“When Everything Changes, Change Everything” by Neale Donald Walsh.
I am not a religious freak, I don’t go to any church, I am not recruiting you into a cult.
I have also appreciated, and benefitted from, the writings of Eckhart Tolle.
Some will say that this is just new age bullshit, but the end of the rope is nothing to fool with! Best wishes!