For decades my mother-in-law told my wife that she never wanted to be a burden to her or her brother in her old age, and that if anything happened she wanted to be put into the local nursing home.
About four years ago, it started becoming clear that Nancy was no longer able to take care of herself without some help. For a while that meant having local professional caregivers come in once a day to make sure she had dinner (she got lunch at the senior center every weekday).
But by three years ago that was no longer enough. Her mild cognitive impairment has steadily descended into full-blown dementia (but fortunately not Alzheimer’s), and her weakened heart has made her increasingly physically frail.
When Covid hit, Nancy moved in with my wife’s daughter and her family for a few months, and two years ago my wife and I moved into Nancy’s home to be with her full-time. I was just a few months from retiring from self-employment, and my wife had left her previous job a few months earlier and was fortunate to find a less-stressful one nearby.
As I wrote about in this thread last August, since then caring for Nancy has been our responsibility, and since my wife, at 62, is still working full-time (or more), most of the daily care falls to me. It is not particularly onerous: getting her up and dressed in the morning, seeing that she stays hydrated (a major issue, because she has dysphagia, and collapsed from dehydration a year ago), getting her to the senior center when possible, making dinner for the three of us, and putting her to bed.
For more than six months I have also been changing her disposable panties at least once or twice a day and cleaning her after she uses the toilet. (The suggestion of a bidet fixture for the toilet made in the other thread has made that process much less unpleasant.) I am somewhat surprised at how normal-seeming it has become for me to wipe the buttocks of an 86-year-old woman.
When my wife and I travel for vacations, my brother-in-law comes here to take care of her, and from Thanksgiving through New Year’s she flies out to stay with him and his family in Kansas. So we get those breaks. However, it may come to a point where those trips west are too much for her.
Fortunately, Nancy had the foresight to put the home we’re living in, which has been in the family since 1960, into a trust that will convey it to my wife and her brother on her death. So if she has to go on Medicare and spend down her assets, we won’t have to sell it and be homeless.
But as I pondered in the other thread, at some point her care may become too burdensome for us and we’ll have no choice. All we can do is keep her safe and comfortable for as long as we can.
The point is that if Nancy of 20 years ago saw herself now, she would be appalled. This is not what she wanted for herself or her children. But what were the options? She doesn’t have long-term health insurance, nor does she have enough money to pay hundreds of thousands a year for full-time nursing care. Despite her clearly stated preferences, her family has had no choice but to take care of her in a way she hoped to spare them from. As others have said, this is what families do.