Hi all.
HAPPY BIRTHDAY RIGS!!!
Been busy with Bub the last while - she is now three months old (obligatory new pics) and thriving, despite our rough start. I don’t know if I told you all this, because it all happened when we were in Australia and I try not to focus on it too much …
Okay - so when Noor was born, she wouldn’t breastfeed. No biggie, but I was determined to breastfeed, despite the fact that she wouldn’t latch on and we had difficulty just waking her up to feed. When she was 7 days old, I was trying (as usual, in vain) to get her to feed, when she suddenly turned blue all over. I freaked and screamed for my mother, who rushed in, turned Noor over on to her tummy and saved the day. I called the paediatrician straight away and he told me to take Noor to the Emergency Department. We piled into the car and drove in. I filled in all the paperwork and sorted out the insurance info and the ER nurse walked out to ask me what the problem was. I was in the middle of explaining what happened when Noor suddenly turned blue again! SH*T!
So they rushed her into the treatment room, where they found her O[sub]2[/sub] saturation was only 78%, and revived her with a little oxygen. The ER doctor came over and tried to tell us that the pulse oxymetry sensor was probably faulty and she looked fine, when Noor turned blue again - determined not to have anyone call her a liar!!! She did it once more for the paediatrician when he turned up as well! They actually had to bag her the last two times to revive her.
So then they did a battery of tests, including a head ultrasound, which showed a “shadow” on the left side of her brain. CRAP! Soooooo, the paediatrician decided to transfer Noor to Paediatric ICU at the Mater Hospital in Brisbane. It took several hours for the retrieval team (Paediatric ICU specialist and an ICU nurse) to turn up, when they finally transferred Noor into a humidicrib and we raced up to Brisbane in the ambulance (about 1 hour on the freeway).
Noor then spent the next 2 days in ICU, and had a head MRI done, which confirmed she had an intra-cerebral haemorrhage (bleeding into her brain) in her left temporal lobe. Apparently, judging from the MRI and a subsequent CT angiogram, Noor had some kind of vascular malformation (bodgy blood vessel) that ruptured before she was born and bled into her brain, causing irritation, leading to seizures and subsequently “apnoeas” (stopping breathing).
10 days later, we were finally discharged from hospital, although Noor will have to continue taking anti-convulsant/epileptic medication until she is at least 6 months old, or maybe for life, depending on further tests.
So I try to not think about it as much as possible, but every now and then, I go back through all the photos and just cry, with happiness that she’s okay, with frustration that she’s got a blood clot in her brain that might affect her speech or motor function, with anger that this happened to us. AAAARRRGGGHHHHHH!
Whew, I needed to tell that story again and get it out of my system!
Carry on …